So I'm back after a LOOOOONNNNNNNNNNNNNGGGG break from blogging! In all honesty, since my last operation, I've felt really deflated and down so hadn't attempted to post anything.
I wanted to do a post on 10 Things that every Endometriosis sufferer needs! These are just things that have personally helped myself or other sufferers that I know of! Feel free to message me any of your own tips or tricks that have helped you! The more the better!
#1. A comfortable bed.
Any chronic illness sufferer will tell you that having a comfortable bed or place to sleep will make all the difference. People suffering from a chronic illness often have a compromised immune system which means that the body takes longer and needs more energy to heal and repair itself. This often leads to a lack of energy and chronic fatigue. Having somewhere comfortable to lie down and rest will allow your body to relax and sleep will aid in the healing process as most of the body's repair work takes place during sleep. Not to mention that being comfortable will make any pain you're experiencing slightly more endurable. It's always helpful to have a selection of comfortable pillows to experience maximum comfort and aid restful sleep.
#2. A hot water bottle.
I can hand on heart say that I love my hot water bottle and it's my best friend. A hot water bottle is a inexpensive way to help make your pain more bearable. They're often very cheap to buy and you are able to take them with you wherever you go. The heat will help to make cramps less painful and the warmth in general is very comforting.
#3. A heat mat/electric blanket.
Similar to the hot water bottle, an electric blanket is perfect for people with chronic pain. Working in the same way that a hot water bottle would, a electric blanket will help soothe any aches or pains and also help your body to relax whilst in bed. Having that direct heat at the touch of a button really is very reassuring and I always feel more comfortable when I have an electric blanket on. These can be bought at most shops and home-ware stores.
#4. Strong pain medication.
Any Spoonie or Endobabe know's that STRONG pain medication really is going to be in your go to kit. There are many over the counter painkillers that will help with mild pain such as Paracetamol or Ibuprofen, which is helpful in reducing inflammation (one of the main symptoms of Endometriosis. Often, or atleast in my personal experience, neither of those particularly make a dent on the pain I experience. I find that for everyday to severe pain the strongest Co-Codamol is helpful as is Codeine- which can be prescribed by your GP or Doctor. Tramadol has also been helpful although both Codeine and Tramadol are not advised to be taken on a regular basis due their addictive qualities.
#5. The use of a bathtub.
Again, similar to the hot water bottle and electric blanket, the ability to lie in a bath of warm water will help to relax any aching muscles and soothe any inflammation and cramps you may have. There are many different kinds of bubble baths that are specifically for tired or aching muscles or inflammation. My particular favourites are the Radox Muscle soaks and also Deep Heat's bath foam which has warming properties which again help in soothing tired and aching joints. Another product which might offer some relief is Epsom Salts. These can be purchased from most stores or via the internet. They are particularly good in helping to reduce inflammation and help calm tired limbs.
#6. Comfortable Pyjamas.
#7. Endless supply of pants.
This one is something I think most Endometriosis sufferers can relate to. The problem of going through several million pairs of underwear due to the unpredictable nature of the bleeding that occurs due to Endometriosis is one I know all too well. I'm convinced that I have probably bought several thousand pairs of pants in my lifetime, which is quite sad in itself really but is necessary. I try to keep at least one spare pair of underwear on me in my handbag or bag whenever I know I'm leaving the house, on the off chance that I'm caught off guard and need to change my underwear pronto!
#8. A constant stock of suitable Sanitary towels, tampons or products.
There is nothing worse than the dread and panic you experience when you have realised you have started to bleed and you have no access to any sanitary products. I try as often as possible to stock up on sanitary towels which I will also keep in my handbags, overnight bags, and all over my house. Whilst it may be a little awkward to carry them around in public, it's definitely better to have them on you rather than not.
#9. Trusty sweatpants/onesie/tracksuit.
Similar to the comfortable pyjamas, I strongly advise any sufferer to purchase a good pair of elasticated waist trousers, such as sweatpants. I also have several different 'Onesie's' which are perfect for those days where you are tired and nothing seems to fit without feeling like a sausage about to burst from it's skin. Another alternative is a nice pair of elasticated jeans, leggings or ali ba-ba trousers which are fantastic to wear and very comfortable if you are experiencing cramps. The loose fabric is gentle on sore legs and swollen tummies.
#10. A understanding friend or relative to vent to.
This is probably one of the most important things that an Endometriosis sufferer needs. It's amazing how disabling this disease can be and you can feel very isolated and alone. It's very important to have atleast one person that you are able to talk to freely about your condition/s. Being able to vent mentally will help relieve stress and tension and will overall help to lift your spirits. I've found it especially helpful to speak to other sufferers as these tend to be the most supportive kind of people to speak to as they can relate. There re quite a few different ways you can get in touch with people experiencing Endometriosis these days with the ever expanding of social networks. I have found the website www.healthunlocked.com and www.myendometriosisteam.com particularly helpful as-well as Instagram and more recently facebook. These are a great way to share your thoughts, fears, stories and tips with other sufferers and I am always overwhelmed by the never ending love and support by my fellow Endosisters. Remember that although this disease is incredibly difficult to manage- there are people out there who can completely relate and appreciate your struggles, not to mention its a brilliant way to make life long friends. Some of the most beautiful women I have met through Endometriosis has been through these networks so it's highly recommended.
Hopefully you have found some of these suggestions helpful! Again these are personally things that have helped me and are in no way meant to be medical or professional advice. I speak only as an Endometriosis sufferer myself.
Feel free to comment, share or email me any tips or tricks you have found to be helpful!
Hoping everyone is having a lovely pain free day and weekend!
Love always,
The Endo Artist
x
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